My mind goes a little crazy when I can’t sleep. I bet many of you can come up with more verses. Leave a comment and let me know what you’ve got!
(Sung to the tune of Oh Christmas Tree)
Oh Parkinson’s, Oh Parkinson’s
You must have got it wrong
Oh Parkinson’s, Oh Parkinson’s.
I’m not weak, I’m strong.
My steps might freeze, my hands might shake
It’s 3 am, I’m still awake
Oh Parkinson’s, Oh Parkinson’s
I’ll fight you all day long.
Continue reading “Oh Parkinson’s”
The Thanksgiving holiday has come and gone. I started it in the kitchen fairly early in the day. My first thought was, “How come everyone in the house is sleeping and I am chopping vegetables?” Quickly, my second thought became, “I am so fortunate that I can chop vegetables.” This season has brought a host of tragedy with it. In California, there are many who have recently lost family members and homes in the wildfires and there are many families that lost loved ones in the recent Thousand Oaks shooting. I am blessed that I have a kitchen and that my home will be filled with family and friends this season. Continue reading “Gratitude”
I spend lots of time reading about Parkinson’s treatments. After all, my quality of life depends on it. It’s like looking through a rain streaked window. Everything is blurry, but once in a while, you catch a glimpse of something clear and you get hopeful that the sun will break through and make everything clear. Then more rain falls, and that glimpse disappears and we wait for another peak of clarity and get our hopes up again.
In my head, I hold on to the clear pieces that I have seen and try to fit them all together. In my head, the researchers have squeegees and are trying to fend off the downpour of toxins, bad genes, head injuries and whatever else they think might be causing PD. (Aren’t you glad you don’t live in my head? It can get pretty weird in there!)
Continue reading “Looking Through the Raindrops”
Even before I was diagnosed with Parkinson’s, I think I was always one of those people who was worried about tomorrow. What is going to happen next? Will things go according to plan? I needed everything to be in my control. Ha! The person that said we plan and God laughs was right. It seems that very little is in my control. God has a plan. Darned if I know what it is, but I know it is good. I heard a quote from writer and producer, Norman Lear recently. He said,
“We don’t pay enough attention to the words over and next. When something is over, it’s over and we are on to next. If there was a hammock between over and next, it would be living in the moment.”
Continue reading “Living in the Moment”
Anniversaries are usually happy and joy filled. They are also times for reflecting back over the past year. Well here it is. I am coming upon the second anniversary of my PD diagnosis. That day two years ago was anything but happy and joy filled. It was terrifying and fear filled. My first year of PD was a very bumpy rollercoaster with many more out of control twists and turns than I would have liked but this second year has leveled out and there have even been some very happy high points.
Continue reading “Happy Anniversary?”
The research is out there. The case studies are available. Exercise helps those with Parkinson’s. In my opinion, it isn’t just beneficial, but it is necessary if you want to live a full life with PD.
I know the docs are busy but this isn’t brand new research and those being diagnosed need to know that exercise will help them and the sooner they start, the better. It is crucial that the word gets out to the patients…those who live day in and day out with this disease. They need to know it on the day of diagnosis. How do we get the word out if the doctors aren’t telling the patients?
Continue reading “Something Needs to Change”
April is Parkinson’s Awareness Month, a time to shed new light on this jumble of symptoms that we label a “disease.” If you ask people what they know about PD, many will say that it is a disease that old men get that makes them shaky, stiff and unable to walk. That may have been true for most people with PD years ago but things are changing.
The average age of onset is 60 years old and according to the Fox Foundation, 10% of PWP are diagnosed before age 50. So much for it being an old person’s disease. Sixty thousand new cases of PD are diagnosed each year and men get PD at a rate of 2:1 compared to women. That means that there are a lot of both men and women suffering with PD.
Continue reading “Not Your Grandfather’s PD”
International Women’s Day
Men are diagnosed with PD almost twice as often as women. I get the honor of being in this minority of females. I never chose this group. I had no choice. I do have the choice in responding to it. I choose to not sit back. I choose to educate myself and others. I choose to not be a victim.
Continue reading “Fight Like a Girl”
Today, I learned about a hero. His name is Tony and though his name may never be a household word and you may not recognize him on the street, he is a true hero in my book. Today he is undergoing experimental DBS Plus surgery.
Continue reading “There are Heroes Among Us”
Have you ever told a fortunately, unfortunately story? I used to assign this to young writers to get their creativity flowing. Fortunately, I am still around today to write about it. Unfortunately, my storyline has changed. Lately it goes something like this.
Unfortunately you have a chronic illness. Fortunately, you can change your diet and you will feel better. Unfortunately, you will have to give up some good stuff…sugar, gluten, dairy. Fortunately, you can eat all the fruits and veggies you want. Unfortunately, many of those fruits and veggies are covered with pesticides. Fortunately, organic fruits and veggies are available, although…unfortunately, very pricey.
Continue reading “The Fortunately Unfortunately Diet”