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Nov. 1, 2017

I attended a conference this weekend where it was noted that it is the 200th anniversary of PD or at least when it came to be known as PD. In 1817, James Parkinson wrote an article on Shaking Palsy, today known as Parkinson's Disease.  The next big development in the world of PD was the  development of Carbidopa/Levidopa as a medication to treat symptoms.  This happened in the 1960's. In the 1990's Deep Brain Stimulation surgery started  being used to treat symptoms. Lots of research is being done and newer treatments and meds are being used but there is still no cure.  And so we wait.  I'm not good at waiting.  I tend to be impatient and like to take action.  So while I wait, I exercise.  While I wait, I research.  While I wait, I participate in research.  While I wait, I educate others.  While I wait, I do everything I can to keep my body, mind and soul healthy.   While I wait, I am participating in this wonderful life that God has given me.  While I wait, I pray.  Waiting is allowing me time to find my purpose on this rollercoaster journey.  God is in the wait.  And so I wait.

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Oct. 22, 2017

Whether  retired or still in the workforce, we all have lives and having PD on top of that  only adds to the mania of daily life. No one wants to do Parkinson's all day, yet we have no choice.   I am fortunate enough to only work part time but I often wonder how PwP, or other chronic illnesses, work full time and work on staying healthy.

My "new normal" involves going to the grocery store more often to get fresh produce and taking more time to plan meals. Long gone are the days of pulling through the drive thru to get a burger and fries when I don't feel like or don't have time to  make dinner.

My "new normal" also involves finding time to exercise every day.  Sometimes I go to the gym, sometimes I go hiking, sometimes I go to yoga class and sometimes I can only eek out a half hour to ride my exercise bike or jump on my elliptical.  My "new normal" also involves many more doctor visits than I ever imagined, PD conferences, support groups, not to mention the hours spent doing online research. My "new normal" is crazy busy because I get to go to the gym, I get to go to good doctors, I get to go to grocery store, and I have access to a world of online resources.  Dare I say thank you for my "new normal?"  To be honest, I'm still working on that one.