Every town has its own vibe, its own groove, its own"buzz" so to speak. I am fortunate enough to live in Orange County, California where not only are the beaches outstanding, but it has so much going on. It is definitely an area rich with resources for its residents.
Among these resources, are lots of activities for people with Parkinson's Disease. When I was diagnosed with PD, I was not made aware of all that was available locally to help me. I'm now 2 1/2 years post diagnosis and see the same thing happening to others recently diagnosed. What a waste to have all this good stuff and not know about it!
Well, we PD warriors are a hearty breed and when we see a problem, we like to fix it. A small group of us got together and the result of our collaboration is PDBuzz.com. Our goal is to have one site that lists all the PD resources available in the county: support groups, exercise classes, rehab services like PT and speech, conferences and more. We have experienced the benefits of being plugged into the PD community and want everyone else to have the same opportunity. PD can be a tough journey and no one should have to go it alone.
We are still getting the word out about PDBuzz.com to doctors and other organizations but so far, the response has been outstanding. Doctors in the area have expressed that they don't have the time with their patients to inform them of all that is available. Organizations giving educational conferences want you to attend. They want to get the word out to the people with PD, their families and their caregivers. We even heard from someone out of town that will be coming to visit for an extended stay and was excited to know what is available here. What an unexpected delightful result of our work!
If you live in the OC area, check out the site. Consider taking advantage of some of the activities and please let us know if there is anything PD related in OC that we are missing. If you are from somewhere else, I encourage you to seek out resources in your area. You are not alone and we are better together!
We are people with Parkinson's helping people with Parkinson's.